I think so too Hubert and I agree entirely about keeping it real. If we don't we do ourselves no favours and it becomes a "divided we fall" situation - maybe that is CF's modus operandi.
If we can be in touch with each other we can work together, help and support each other in a mature and adult way. Once we can tease out all of the issues we have as individuals, get them written down, and get official clarification of what SHOULD be happening by bringing it to the attention of the big guns who can demand action we can put a stop to all this inconsistency we are being fed.
There will be many unlucky people who don't access this forum who just do as they are told and don't realise that they have the power to question. These are people who also deserve to be treated with respect and, to be fair, probably even more so than us that have the guts to raise issues. How many people are now on the road to failing their IVAs because of CF I wonder? If I had not got the folk on here I would feel so isolated and beaten by now.
If we can as a group get clarity, reasonableness and a decent standard for EVERYONE and not just ourselves then we will have achieved something really worthwhile as well as making sure that we ourselves are treated more fairly.
I am on a mision
