ME (Chronic fatigue syndrome) diagnosed today. Sad but not surprised and in some respects it makes things easier because at least now people realize what's the matter. Work will stop hasseling me so much but money will end up being a problem if I can't get back. Support doors will open but the me I know will need to change - no more cavorting on the stage for me. Perhaps i will take up jigsaws!!!
Once you learn to "pace" and to resist the cavorting things will get easier. You will also learn the warning signs and slow down in advance of a meltdown ( I am "lucky" in that, if I start to overdo things, I get tinnitus before being bedridden for a while -- so slow down right away and usually get away with it). My biggest bug bear is driving ... I can do the journey, but DO pay for it afterwards (sometimes it's worth it though !).
My opinions are merely that .. opinions based on experience. Always seek professional advice.
IVA Completed 23rd July 2013 .... C.C. 10th January 2014
Thanks Foggy - have been learning already over the last couple of weeks - the diagnosis just explains everything now. Just need to get my financial stress sorted and hopefully a F&F intended will go through (my family is funding) and then i can settle back and manage the condition better. Thanks again.
I'm glad you've finally been diagnosed Elizabeth - at least you know what you are up against.
Hope you get the support you need.
Sharing from experiences of dealing with debt
The greatness of a man is not in how much wealth he acquires, but in his integrity and his ability to affect those around him positively.
Bob Marley. http://kallis3.blogs.iva.co.uk
I know it sounds bad to say am glad you have a diagnosis, but it must be such a relief that a name has been put to your problems. Be patient and all will be well
Good news and bad news all in one. Work will have to ease off now and you can start properly looking after yourself. You can still cavort, you'll just need to rest up beforehand and afterwards...like some grand dame! xx
Getting a diagnosis is a relief. I have MS and suffer extreme fatigue. I sleep all day after driving the kids to school to give me just enough energy to function once they get home. I still have to pace myself though. Do little and take plenty of rests.
I was given tablets to help me stay awake through the day but was taken straight back off them as they gave me Amnesia LOL
Thanks for the messages. I had begun to realise what the problem was over the last 2 weeks.At first couldn't work out the problem having been off work since last Oct/Nov with heart disease and had test etc I was getting worse not better. Had to begun to realise that i was trying to "make" myself better rather than pace which is totally different. I start with a good ME specialist next week who I have known for years and as it's been noticed before I've got too disabilitated I hopefully won't end up in a wheel chair - he knows my train of thought and he says I will have to follow his programme to the letter -hm doing as I am told - that will be a new one.
You do need to do as you are told Elizabeth - hopefully you will make a full recovery from this. You certainly sound more positive today than you have done recently.
Sharing from experiences of dealing with debt
The greatness of a man is not in how much wealth he acquires, but in his integrity and his ability to affect those around him positively.
Bob Marley. http://kallis3.blogs.iva.co.uk
That's fantastic that you have such great support. You may even enjoy being bossed about and looked after for a bit!! Lisa - I didn't realise ME could be so extreme. I know a couple of people who had it and they needed afternoon naps and early nights but they must have been mild forms.
Sharing from experiences of dealing with debt
The greatness of a man is not in how much wealth he acquires, but in his integrity and his ability to affect those around him positively.
Bob Marley. http://kallis3.blogs.iva.co.uk
I'm sure she won't mind BOL! It's an easy mistake to make.
Sharing from experiences of dealing with debt
The greatness of a man is not in how much wealth he acquires, but in his integrity and his ability to affect those around him positively.
Bob Marley. http://kallis3.blogs.iva.co.uk
Hope you manage to come to terms with diagnosis. There are some really good consultants & sometimes alternative types of treatments help. There are some good support group in the UK as well. MS & ME has some symptoms in common, fatigue being the most. None of us know what fatigue is unless we have one of these conditions.
The road is 72months long starting September 2010.
